My mother was (re)diagnosed with cancer just about a month after I turned 19. This is generally a time in one’s life where you begin to realize who it is you’d like to grow into and you begin to develop ever larger dreams and ambitions, all the while maneuvering so as to realize these wants. For me this was the time that I was first called upon to act as a caregiver to one of my parents. This was when for the first of many times I would comfort my mother in her hospital bed and bring her home for further convalescence. We had had a great deal of experience with cancer earlier in my life so I knew that with this announcement most likely a long and arduous trial was ahead. Instead of feeling excitement at the endless possibilities of life stretching before me I was terrified with a new sense of potential loss and disaster.
In the seven years that followed I managed to procure requisite college degrees, but failed to gain any truly meaningful work experience or independent projects. While I struggled to complete my schooling I spent a good deal of time in chemo and radiation labs, doctor’s appointments, and hospital rooms. Of course this also meant that I had a much more intimate and meaningful relationship with my mother than most other young women my age and I was lucky enough to learn not to take for granted a parental relationship that most women do not fully appreciate until much later in life.
So the development of my identity as an adult woman was largely centered around caregiving and what became a mutually dependent relationship with my mother. Following her passing I find that I am not only grieving for the loss of a great friend and a wonderful mother, but I don’t know who I am as an adult woman without her. I never learned who I was outside of the caregiving framework.
Now I’m newly married and living in a beautiful city free to discover who i might be outside of familial needs — but it’s really strange. I’ve gotten used to frameworks of need - of knowing what someone needs from me and acting to fill that need. I don’t know how just be in my own life, to act of my own accord and make life happen for me in the way that I want it. So in many ways I’m only beginning to learn who is my adult self — I’m suspended at the age of 19 learning how to navigate the grown-up world and trying trying to realize my day dreams (and indeed only recently feel like I have enough time and space to know what those dreams might be). But I’m scared that now it’s late in the game. On the other hand - I’ve done things and lived my life in a way that most people don’t experience or aren’t asked to do until they’re much later in life.
It seems to me now that I’m living life backward; developing incongruently to those around me. The years of my early adulthood have left me feeling like a child-crone, made old by loss and grief but still a wide-eyed girl who’s a bit timid and afraid of the outside world. I’ve learned a great deal about life, indeed the very nature of living, but don’t quite know how to live in the world.
This summer I learned to boogie board while staying at the beach in North Carolina for a few weeks and in the process learned a lot about waves and how to “read” them. “Reading waves” is somewhat of a misnomer as you don’t so much read the waves as predict them by reading their embryonic swells. And then when the wave crests, you’re in the right place at the right time to catch it, riding out the break. When people say that grief “comes in waves” what they generally mean is how non-linear it is, how unpredictable and recursive and arcing its tempos. But what I have come to understand — especially in this new season of grief that my sister and I seem to be sharing, even though we’re now on separate continents — is that these currents and surges of grief act like waves — that if I don’t anticipate these mourning feelings, they break upon me like the surf and I’m left gasping for air and pummeled and turned about in ways that leave me feeling unrecognizing and recognizable to myself. I have been so busy as of late and worried about the daily grind of the professional/personal that I had completely lost track of the date and so had failed to anticipate my mom’s birthday and what that date would bring up for me in terms of fresh currents of grief and mercilessly raw feeling. As a consequence, I’ve had a struggling week. Everytime I feel like I’ve got a handle on things — my grieving staying put at home and in my “off hours”, my functioning happy productive self being the face I show everyone/where else — I do or say or feel something that proves the lie to this. Today I’ve had to accept that I have as yet so much work to do to learn to live with a loss that is, simply put and in the most literal sense, unbearable to me. I don’t know how to bear the fact that she is gone nor how to learn to bear it. I do know that there is a real urgency about this for me as not being able to bear it — or more to the point, not being able to fully bear up under the pressures of the unbearable — continues to disrupt my life in all kinds of ways, and I am so grateful to Marya for creating this space where we can share in this project of healing together. I think my mom — who wanted more than anything that her children love and support each other — would be really into that.
I inaugurate this blog on this day that would have been my mother’s birthday, had she not passed this last January. This will be a blog devoted to the experience of becoming a caregiver at the age of 19, the long process of assisting my mother through various cancer treatments for seven years thereafter, and the profound loss and grief that I have suffered along with my family this past year.
Today is strange. I woke up not knowing how to feel, thinking that i should already be profoundly sad. But I think I didn’t realize really how strange and full of sorrow I felt until I went to the studio where I work and could hardly speak and could not at all focus. So I left. And I lit a candle at a church near my apartment. and there i cried, but didn’t weep.
The truth is I’ve had worse days. This is a medium grief day. I have had, and only last week, days where I wept uncontrollably for so many hours that my eyes were nearly swollen shut. Today my grief is not causing me the stomach-stabbing pain the causes me to weep in such a painful way. instead it is dull pain, it is numbness. this is the form of grief where my eyes can’t focus and my reactions are delayed. It is no less painful, but is a different brand of pain. One that is so inexpressible that even the common language of sadness - crying - is insufficient.
At any rate, my writing is right now sub-par exhausted, as I am from trudging through - making it through- this day without a complete breakdown. This day is to reflect and remember my mom, to start - I hope - to help other young people like myself (and my sister) grieve and acknowledge that to know loss before the age of 35 invisibly ages you and presents you with challenges most others in our age group have not yet faced.
Here, for my mother’s birthday, is an excerpt from the amazing eulogy my sister compiled:
“Among the many wonderful, and deeply appreciated remembrances that have arrived since my mother’s passing last week, is this story from a former administrator at the school where my mother taught for over two decades, a story that my sister and I particularly cherished. The letter related how each morning, on her way to the class room, my mom would stop by the window of this administrator’s office, wave and bring her smiling face so close to the glass so that she deliberately left an imprint of her nose, then pull away and laugh before heading off to teach.
My mother was funny and warm, quick to strike up intimacies, easy to talk to—she was a great listener—and so easy to like. She loved cooking for a crowd, talking on the phone, flower gardens, foot rubs, the beach, Mexican food, swimming, midnight snacks, looking at the stars, the conversation of children, ice cream, Star Trek re-runs, Art museums, and the collective cinematic achievements of Sandra Bullock. She loved making things—from her gorgeous paintings and stained glass, to bread from flour she’d ground herself, exquisite Halloween costumes for her children, a beautiful dollhouse she and my father made for me one Christmas, filled with furnishings she’d also assembled and sewn. And once, I came home from school to what seemed to me a small miracle: homemade donuts just coming out of a deep fryer I didn’t even know we owned.
Although she wouldn’t have considered herself an intellectual, my mom was incredibly smart. She really got things. And she knew so much. It seemed to me she had a natural acuity about everything worth knowing—not least of which was a very specific understanding of how best to be in the world. I was often surprised by just how much my mother knew about so many things, how many things she knew how to do; as a small child habitually awed by what seemed the limitlessness of my mother’s “knowing”, I devised a theory of her intelligence—I thought that maybe when you became an adult, you just naturally knew more. Overnight. Or else it happened during pregnancy—the vast knowingness of mommies. Of course, I now know that I got the adult part totally wrong; I’m not placing any bets on pregnancy either.
My mother was also an intense person, possessing an innate focus, drive, and passion that revealed themselves in her very best traits—her loyalty to friends, her commitment to students, her gifts as an artist, her immense creativity and curiosity, her essential joyousness, and most of all, her vast love for her family and tenacious will to live. She taught us, her children, to be independent, to think critically about the world around us while also relating to it through compassion and love. She was deeply ethical and really believed in being a positive force in the world. She had a strong sense of social justice and believed in cultivating rather than merely tolerating diversity as a central value. My mother was also very spiritual. She believed, especially, in the importance of ritual, the tangible affirmations and renewal of faith, the connection to a cosmos majestic in its mysteriousness, and to a universal love that was among her deepest convictions.
So exemplary, strong, inspiring, truly amazing—these are some of the terms that regularly come up in conversations about my mom. I know that many people consider her the most singularly heroic person they’ve ever met. Too, I know that my mom is remembered by many children, some of them now adults, as the best elementary school teacher they ever had. What distinguished her teaching in part was her creativity—the unique projects she devised, her efforts to make the classroom through its aesthetics as well as the curriculum a lively, engaged, and exciting space for learning. For my mom, teaching wasn’t just about learning objectives—the particular skills or knowledge she needed to impart—but about the process, the journey of learning. I suspect that for the students who remember her with special fondness, it’s because of that journey. Not what they learned but how they got there with her.
I cannot begin to do justice, here, to what an extraordinarily wonderful mother she was, what a privilege and gift it was and is to be her daughter. It will suffice to recall how each night of my childhood, before I went to sleep, she would sing to me, say prayers with me, patiently talk out whatever worries were crowding my mind; she kept up the lullabies well into my pre-adolescence; and for years now, my parents’ phone bill has been a record of how that cherished habit of talking out the day’s vexations continued into my adulthood. These past few months of deterioration robbed her, among so many other things, of the strength to be “a mother” in the way that I have always known. But what that loss gave me was an appreciation for how much I loved her as ‘Barbara’, beyond her very particular, very central role in my life. She was so amazing. And she meant the world to me, and now I can’t imagine being in it without her.”